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Matt Pickles
Matt Pickles
Matt Pickles
Story
On December 1 I will be attempting to take on the WA Ironman over in Busselton. A casual Sunday involving a 3.8km swim, 180km ride and 42.2km run. Outside of a personal challenge I am hoping to raise some funds and awareness for the Prader-Willi Research Foundation Australia (PWRFA). Prader-Willi Syndrome (PWS) is a rare genetic disorder, with an estimated 2,000 people in Australia living with it. It results in several physical, mental and behavioural problems often characterized by weak muscle tone, developmental delays and a constant sense of hunger.
My youngest sister Lucy was diagnosed as a child and we have therefore experienced first hand the impact PWS has on the individual and those close to them. The PWRFA provides world leading research and is actively improving clinical outcomes whilst looking to deliver better treatments for people living with PWS.
I would be incredibly grateful for your support. Your donations will not only help fuel training but also help drive important advancements in understanding and addressing PWS. My goal is to raise $20,000 roughly enough to provide 6 months of project management for the PWRFA Centre of Expertise.
Donations over $2 are tax deductible and all contributions will be matched.
https://praderwilli.org.au/
Prader-Willi Research Foundation Australia Ltd.
We exist to transform life for families living with Prader-Willi syndrome, a non-inherited genetic condition impairing physical, mental and psychological wellbeing. Caused by an abnormality in chromosome 15, people with PWS have low muscle mass, impaired cognition, mental illness including severe anxiety and psychosis, rages, a failed appetite mechanism and numerous medical complications. They require 24/7 food security and supervision (to prevent a fatal binge eating episode) and help with all their daily activities. Families are doing it tougher than any other families living with developmental disability (ACAD study, Uni Sydney). We aim to find transformative treatments to give life to people with PWS and their families.
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