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Emily Trinick rides 100kms for Save Our Sons
Kendell Pesavento
Emily Trinick rides 100kms for Save Our Sons
Story
My name is Emily and I am a teenager planing to ride from Lake Tuggeranong to Lake Ginninderra via Lake Burley Griffin in early January.
The ride will be about 100km.
I go to Telopea Park High School in Canberra and as part of our curriculum we have to undertake a Personal Project.
I chose to do a bike ride for Duchenne Muscular Dystrophy because I have an 8 year-old friend suffering with it, so it is a cause that I am passionate about.
Please support me by sponsoring my ride. All the money is going to a great cause.
Thank you for your support,
Emily
What Is Save Our Sons?
Save Our Sons is a charitable organisation which raises awareness and desperately needed funds for Duchenne Muscular Dystrophy (DMD) research. DMD is a severe muscle wasting disease which affects mostly young boys. It has a 100% mortality rate and at present there is No cure. Once diagnosed most children are confined to a wheelchair by 12, and do not live past their late teens.
Save Our Sons is working with some of the world's top researchers to find and fund a cure for DMD. But we need your help.
With the support of wonderful people like Emily, we are on target to reach our goal of funding a clinical trial here in Australia.
Sponsor Emily and help us find a cure for DMD.
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Save Our Sons INC
Save Our Sons Duchenne Foundation was founded in 2008 and is now the peak body for those living with Duchenne and Becker muscular dystrophy across Australia. Our vision is to find a cure for Duchenne & Becker muscular dystrophy.
Duchenne is an X-linked genetic condition that affects 1 in 3500 boys and in very rare cases 1 in 50 million girls. It is the most common and most severe form of muscular dystrophy and is also known as dystrophinopathy, which refers to a mutation in the dystrophin gene, with a similar milder form of the condition called Becker muscular dystrophy.
Funds raised go directly towards funding research and clinical trials, improving care, funding nurses and providing quality of life enhancing equipment. Save Our Sons aims to make a difference in the lives of all living with Duchenne and Becker muscular dystrophy across Australia.
Our Purpose includes enhancing the quality of life for persons with Duchenne and Becker muscular dystrophy with the ultimate objective of finding a cure for the condition.
To find out more about Save Our Sons Duchenne Foundation, visit www.saveoursons.org.au
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