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Arika Aspires
Anu Madan
Arika Aspires
Story
Hi All,
We were blessed with a beautiful baby girl on the 19th of October 2018 to become the little sister of our amazing Atharv. We were unaware that not only did we have a daughter and a sister, but we had our very own Angel. After an exhausting eight months, Arika was officially diagnosed with Angelman Syndrome on the 27th June 2019.
Angelman Syndrome is a rare neuro-genetic disability caused by a deletion/ mutation with the UBE3A gene on Chromosome 15. It affects mainly the nervous system and causes severe intellectual and physical disability. Symptoms include inability to speak and sometimes walk, movement and balance problems, sleep and feeding issues, seizures and frequent laughing, smiling and an excitable demeanour.
What should have been a year filled with joy, milestones and unforgettable moments to cherish, instead we had extreme difficulty to get through daily tasks and an overwhelming feeling of loneliness, worry and heartbreak.
By contributing to the Arika Aspires fund, all donations will be going directly to FAST who WILL utilise money raised to support research efforts to facilitate a cure to Angelman Syndrome.
However big or small your donation is, it is highly appreciated; and it WILL make a difference for Arika and all her special friends suffering from AS.
We support FAST and we will participate in any clinical trials or studies we can to ensure we are doing our part to bring a cure to reality. Ultimately, we aim to raise money to facilitate the medical research needed to cure Angelman Syndrome which will likely also provide extremely valuable information for the development of cures for other conditions.
We believe Arika was supposed to be an angel because we are supposed to do something, and we will.
If you would like to join us in raising awareness or fundraising for your school or work fundraiser, or any other charity event please contact Anubhuti Madan via Facebook.
Thank you for being an Angel and supporting our Arika and FAST.
Anu, Mohan, Atharv and Arika xoxox
Donations made through this platform are secure and will be remitted directly through to FAST Australia.
More about Angelman Syndrome: https://cureangelman.org.au/what-is-angelman/
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Foundation for Angelman Syndrome Therapeutics Australia Limited
The Foundation for Angelman Syndrome Therapeutics Australia (or FAST Australia) is an organisation of families and professionals dedicated to assisting individuals living with Angelman Syndrome to realise their full potential and quality of life through funding research, education, and advocacy. Our focus is treatments that will improve the symptoms of Angelman syndrome and ultimately research that will provide a cure.
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