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Julie & Pirate pete's Adventure
Julie Cini
Julie & Pirate pete's Adventure
Story
Hi All,
Most of you all know I'm pretty passionate about my charity Spinal Muscular Atrophy Australia, So myself and my great friend Robyn were at a fundraiser on the Sunday of me leaving for my trip and we bid on this amazing little guy at the silent auction. I said if I win him, he will travel with me and I will take photos of us together, and the idea just snow balled into making it a awareness raising and fundraising exercise for SMA.
So your job is (for a donation minimum of $10) to give us suggestions for photos in Rome, (then a cruise around the Mediterranean) followed by a few days in Venice then back to Melbourne
You could ask us to get a check in photo, or with the flight attendants, get snapped with a statue in Rome or visit the Vatican. Lounge on a deck chair, on a train. We will try and get as many of the requests done as possible. All whilst raising awareness for SMA...
My SMA journey has spanned the last 10 years after the loss of both my daughter's ( Montanna and Zarlee to Spinal Muscular Atrophy Type 1) and I now run the national charity that supports families on their SMA journey. SMA is the number one genetic killer of infants under the age of 2. My girls are forever in my heart and I am sure will be spurring me on in this next adventure.
Thanks everyone for your support.
Jules
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Spinal Muscular Atrophy Association of Australia Inc
The Spinal Muscular Atrophy Association of Australia Inc. is the first national service supporting families and individuals affected by Spinal Muscular Atrophy. As a non-government funded charity we rely solely on philanthropic bodies and fundraising to provide support, information and assistive technology to members. Spinal Muscular Atrophy is a genetic disease divided into 4 types; leading to progressive muscle weakness and wastage. This wastage of muscles not only affectes the sufferes external muscles like arms and legs, but all their internal muscles like breathing, coughing and swallowing. The Associations Equipment and Resource Library has been developed to allow members to utilise specialised equipment, aids, and educational tools. ABS documents that 52 Australian lives 1. are lost to SMA and related syndromes ( Motor Neurone disease) each month. As there is no treatment, much less a cure, our fundraising also contributes to vital research. With 1 in 35 people indiscriminately carrying the SMN gene; greater awareness provided by SMA Australia alone is crucial to the education of future generations.
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